Welcome, You Are Not Alone

A Guide for Families of Babies with Cancer

Practical resources, emotional support, and expert guidance for caregivers navigating a cancer diagnosis in infants and toddlers brought to you by caregivers who have been in your shoes. Made with love, guided by research.

You're not alone in this journey.

If your baby was just diagnosed with cancer, you may be feeling overwhelmed, scared, and uncertain about what comes next. This guide was created by parents who have walked this path, and it exists to help you find your footing during the hardest days.

Nothing can make you feel "ready" for this news. But you are not alone.

Parents from across the country, with different diagnoses, different hospitals, different backgrounds, came together to create this resource. We've all sat where you're sitting. We know the fear, the confusion, the exhaustion. And we want you to know: you will find your way through this.

You don't need to read everything at once. Take what helps you today, and come back when you're ready for more.

This guide is brought to you by the Madelyn James Foundation, created by families, for families who have a baby with cancer.

Resource Guides

Topics that matter most.

We've organized resources around the questions families ask most often.

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What You Need to Know When Your Baby is Diagnosed

Learn about common treatments, what to expect, and questions to ask your care team.

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Financial Support: Before, During & After Treatment

Resources for managing the financial impact of your child's treatment.

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How Can I Find Other Caregivers to Connect With?

Support for your mental health and your family's emotional well-being.

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How Can I Support My Family?

Resources for siblings, partners, and extended family members.

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I'm a Bereaved Caregiver

My baby has passed away, and I need more support now more than ever. I miss them each day, and don't know where to turn. This is for you.

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Video Advice by Caregivers for Caregivers

Some words of advice to help you feel less alone as you navigate some of the hardest days.

Video Resources

Advice by caregivers for caregivers.

Watch these videos for practical advice and emotional support from parents, caregivers, and medical professionals.

Advocating For and Cleaning Your Immunocompromised Baby

In this quick tip from our parent advocate, Tahj, she shares her personal experience advocating for her baby and how he could be cleaned during their long hospital stay.

Quick Tip: What I Wish I Knew on Day 1

Jackie, Madelyn James' CEO, talks about what she wished she knew on Day 1 of her daughter's treatment. How we, as caregivers, should be able to ask important, hard questions, advocate for our babies, and build an amazing community of caregivers who have been through this journey. You are not alone.

Breast Feeding at the Hospital with your Sick Baby

When your baby has cancer, and you're still breastfeeding, it's daunting, difficult and confusing. What do you do? In this video, one of our mom's Lindsey, shares how she handled breastfeeding in the hospital. Hopefully it will help you navigate your own journey!

From Our Blog

Stories and insights.

Read articles from our team and the families we support.

Remembrance

A Letter to Bereaved Parents

a letter to bereaved parents: we are here with you and you are not alone.

JD Jackie Didio Aug 23, 2023

Organizations We Trust

We partner with these organizations to help connect families with the support they need. Each has been vetted by our team and shares our commitment to supporting families through pediatric cancer.

Alex's Lemonade Stand Foundation

ALSF is dedicated to changing children's lives through impactful research, raising awareness and supporting families to help cure pediatric cancer.

Learn More
Ronald McDonald House

A nonprofit family & children's charity dedicated to supporting families with sick children in their time of need.

Learn More

Ollie's Orchestra

Learn More

Lila Bean Foundation

Learn More

Made possible by

This resource hub was created with generous support from our lead sponsor.

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